Can Family Carer Groups Help People with Intellectual Disabilities? Applying Focused Ethnography Methods in Community Contexts of Northeastern Thailand
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Abstract
Introduction: This study aimed to explore the experience of family carer groups caring for individuals with intellectual disabilities (IDs) in the community contexts of Northeastern Thailand. Materials and Methods: We applied a focused ethnography method with a purposive sampling technique to conduct 35 in-depth interviews (of 14 individuals with IDs, 12 caregiving parents and nine disability group leaders, respectively), which were audio-recorded and transcribed verbatim, then translated from Thai to English. We used content analysis to code the interviews and develop themes. To evaluate the reliability of the coding attempt, we employed data triangulation techniques. Results: Family carer groups seemed to provide benefit to people with IDs and their families by offering support related to information records, the recovery of health and occupational skills development. Conclusion: Family carer groups are an integral part of efforts to support people with IDs. Notably, these groups may facilitate the early formation of long-term parent carer plans, which can better optimise the care and health outcomes of people with IDs in Thailand.
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Naemiratch B, Manderson L. Pity and pragmatism: understandings of disability in northeast Thailand. Disabil Soc. 2009;24(4):475-488.
King JA, King MJ. The lived experience of families living with spinal cord disability in northeast Thailand. Third World Quart. 2011;32(8):1475-1491.
Suttajit S, Punpuing S, Jirapramukpitak T, Tangchonlatip K, Darawuttimaprakorn N, et al. Impairment, disability, social support and depression among older parents in rural Thailand. Psychol Med. 2010;40(10):1711-1721.
Riewpaiboon W, Piyauthakit P. Disability and cost for diabetic patients at a public district hospital in Thailand. Int J Pharm Pract. 2011;19(2):84-93.
Bélanger SA, Caron J. Evaluation of the child with global developmental delay and intellectual disability. Paediat Child Health 2018;23(6):403-410.
Santoro AF, Shear SM, Haber A. Childhood adversity, health and quality of life in adults with intellectual and developmental disabilities. J Intellect Disabil Res. 2018;62(10):854-863.
Aga N, Laenen FV, Vandevelde S, Vanderplasschen W. A qualitative inquiry on recovery needs and resources of individuals with intellectual disabilities labelled not criminally responsible. J Appl Res Intellect Disabil. 2020;33(4):673-685.
Department of Empowerment of Persons with Disability. Thailand Persons with Disabilities Records. Ministry of Social Development and Human Security, Bangkok, Thailand; 2016.
Bualar T. Disability rehabilitation policy in Thailand: Explaining why it has come under fire. J Asian Public Polic. 2010;3(1):111-117.
Alonso-Sardó M, Iglesias-de-Sena H, Fernández-Martín LC, Mirón-Canelo JA. Do health and social support and personal autonomy have an influence on the health-related quality of life of individuals with intellectual disability? BMC Health Serv Res. 2019;19:63.
McConkey R, Craig S, Kelly C. The prevalence of intellectual disability: A comparison of national census and register records. Res. Develop Disabil. 2019;89:69-75.
Heiman T, Berger O. Parents of children with Asperger syndrome or with learning disabilities: Family environment and social support. Res. Develop. Disabili. 2008;29(4):289-300.
Alcock CL, Camic PM, Barker C, Haridi C, Raven R. Intergenerational practice in the community: A focused ethnographic evaluation. J. Community. Appl. Soc. Psychol. 2011;21(5):419-432.
Chan W, Smith LE, Hong J, Greenberg JS, Taylor JL, et al. Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability. Autism 2018;22(7):794-803.
Neijmeijer LJ, Didden R, Nijman HLI, Kroon H. Assertive community treatment for people with mild intellectual disability or borderline intellectual functioning and mental health problems or challenging behavior: State of the art and implementation in the Netherlands. J Polic Pract Intellect Disabil. 2018;15(4):329-342.
Totsika V, Hastings RP, Vagenas D. Informal caregivers of people with an intellectual disability in England: Health, quality of life and impact of caring. Health Soc Care Community 2017;25(3):951-961.
Wilson NJ, Jaques H, Johnson A, Brotherton ML. From social exclusion to supported inclusion: Adults with intellectual disability discuss their lived experiences of a structured social group. J Appl Res Intellect Disabil. 2017;30(5):847-858.
Sinthuwiwat T, Ittiwut C, Porntaveetus T, Shotelersuk V. Female-restricted syndromic intellectual disability in a patient from Thailand. Am J Med Genet A. 2019;179(5):758-761.
Grey JM, Totsika V, Hastings RP. Physical and psychological health of family carers co-residing with an adult relative with an intellectual disability. J Appl Res Intellect Disabil. 2018;31(2):191-202.
Knoblauch H. Focused ethnography. Forum Quali Sozialforschung 2005;6(3):44.
Spradley JP. The ethnographic interview. Holt, Rinehart, and Winston, New York, NY; 1979.
Morse JM, Richards L. Readme first for a user’s guide to qualitative methods. Sage Publications, Thousand Oaks, CA; 2002.
Campbell S, Greenwood M, Prior S, Shearer T, Walkem K, et al. Purposive sampling: Complex or simple? Research case examples. J Res Nurs.2020;25 No. 8, pp. 652-661.
Case D, Given L. Looking for information: A survey of research on information seeking, needs, and behaviour. Emerald Group, London; 2016.
Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107-115.
Elo S, Kyngäs H. The qualitative content analysis process. J Advanced Nursing. 2008;62(1):107-115.
Oppermann M. Triangulation — a methodological discussion. Int J Tourism Res. 2000;2(2):141-145.
Leung L. Validity, reliability, and generalizability in qualitative research. J family med primary care. 2015;4(3):324-327.
Wark S, Hussain R, Müller A, Ryan P, Parmenter T. Challenges in providing end-of-life care for people with intellectual disability: Health services access. J Appl Res Intellect Disabil. 2017;30(6):1151-1159.
Bigby C, Whiteside M, Douglas J. Providing support for decision making to adults with intellectual disability: Perspectives of family members and workers in disability support services. J Intellect Develop Disabil. 2019;44(4):396-409.
Nguyen M, Lennox N, Ware R. Hand-held health records: A systematic review. J Intellect Disabil Res. 2014;58(12):1172-1178.
Timmeren EA, Putten AAJ, Valk HMJSL, Schans CP, Waninge A. Prevalence of reported physical health problems in people with severe or profound intellectual and motor disabilities: a cross-sectional study of medical records and care plans. J Intellect Disabil Res. 2016;60(11):1109-111.
Bourke J, Wong K, Leonard H. Validation of intellectual disability coding through hospital morbidity records using an intellectual disability population-based database in Western Australia. BMJ Open 2018;8:e019113.
Scott HM, Havercamp SM. Comparisons of self and proxy report on health-related factors in people with intellectual disability. J Appl Res Intellect Disabil. 2018;31(5):927-936.
Lin ML, Chiang MS, Shih CH, Li MF. Improving the occupational skills of students with intellectual disability by applying video prompting combined with dance pads. J Appl Res Intellect Disabil. 2018;31(1):114-119.
Flores N, Moret-Tatay C, Gutiérrez-Bermejo B, Vázquez A, Jenaro, C. Assessment of occupational health and job satisfaction in workers with intellectual disability: A job demands–resources perspective. Int. J. Environ. Res. Public Health 2021, 18(4):2072.
Kocman A, Weber G. Job satisfaction, quality of work life and work motivation in employees with intellectual disability: A systematic review. J Appl Res Intellect Disabil. 2018;31(1):1-22.
Alexander J, Ford J, Raghavendra P, Clark J. Nature and extent of on-the-job training for employees with an intellectual disability: A pilot study. Res Pract Intellect Develop Disabil. 2018;5(2):138-148.
Akkerman A, Kef S, Meininger HP. Job satisfaction of people with intellectual disabilities: the role of basic psychological need fulfillment and workplace participation. Disabil Rehabil. 2018;40(10):1192-1199.